IBDoc Patient Information

IBDoc® Patient Information Leaflet Your hospital is introducing the BÜHLMANN IBDoc® calprotectin home test to support the management and monitoring of their IBD patients.

Calprotectin is a protein that is found in white blood cells. In IBD, calprotectin is released into the gut – it is the best indicator of the inflammatory state of the gut without having to do a colonoscopy. The calprotectin levels relate to the level of disease in the gut and start to rise up to three months before you are aware of symptoms. It is like an early warning system for a flare – this is why it is important to monitor calprotectin, even if you think you are well. It is a system that enables you to do a calprotectin test at home. Watch the video to find out more: Collect a stool sample in the normal way, and instead of putting it into a blue pot for the laboratory, you put a bit into the tube for extraction. Once the extraction is ready you put some of the liquid on the lateral flow cassette and start the timer. It is just like your COVID test, but when the timer is done you read the result using an App on your Smartphone. WHAT IS CALPROTECTIN? WHAT IS THE IBDoc®? WHAT DO I HAVE TO DO? Video embedded: https://www.youtube.com/watch?v=CQgyVGdAE-o

Doing the IBDoc will enable you to receive results the same day as you take the sample indicating whether or not the symptoms you are suffering are due to your IBD or something else. This will enable your clinical team to initiate the appropriate treatment pathway much quicker and relieves the weeks of anxious wait for results from the lab. The home test offers you privacy with your calprotectin tests – Let’s face it, nobody likes handing over that sample. It also eliminates the requirement for journeys to the hospital to drop off samples and ensures it is tested for calprotectin rather than micro or just gets lost in the system. All the hospitals that are implementing home testing are doing it to give additional support to patients. They are not taking away the standard lab test – if you don’t want to do the IBDoc then speak to your clinical team, they will organise for you to do a lab test in the usual way. The calprotectin test provides valuable information, the clinical team need the results however it is provided, home or lab. If your device is not currently supported, then you will get a message stating this. The phone doesn’t need to be your current phone: ï An old phone will work (check the kitchen drawer!) as long as it can connect to the internet (doesn’t need a SIM) ï A relative or partner’s phone can be used. The results are private because the App is login and password protected Once you have confirmed you have a compatible device your clinical team will set you up with an IBDoc account and you will be sent an email from support@ibdoc.net with a link to set a password. Once you have done this you can log into the App. WHY SHOULD I DO A HOME TEST? WHAT IF I DON’T WANT TO / CAN’T DO THE HOME TEST? The first thing is to confirm you have a compatible Smartphone. Scan the QR code and it will take you to the App for free download if your device is compatible: HOW DO I GET STARTED?

There is a lot of information on the website: www.calprotectin.co.uk/ibdoc-home-test-new-patient-support This includes advice on collecting the sample, how to handle different sample consistencies, instructions for use in 22 different languages, and helpful hints and tips. There is also detailed step-by-step video instructions: These will either be given to you when you attend clinic, or they can be posted out to you. When you receive them please keep them in the fridge until you are ready to use. HOW DO I GET THE KITS? HOW TO USE THE IBDoc® KITS Video embedded: https://www.youtube.com/watch?v=tV_hTj9jRLY Video embedded: https://www.youtube.com/watch?v=tV_hTj9jRLY

If help is required, contact: The clinic that have given you the IBDoc kit. If you are experiencing issues with the App or kit then you can also contact BÜHLMANN support on support@ibdoc.net. Note, you will not be required to share personal information. STILL NEED ASSISTANCE? The IBDoc has been through the NHSX Digital Technology Assessment Criteria to ensure that everything is secure and protected. Your personal details will not be shared with anyone without your consent. BÜHLMANN who make the IBDoc Kit and the IBDoc Portal will not see your personal information but they will see your email address (this is covered in the licence when you download the App). IS MY DATA PRIVATE? IBDoc® is supplied in the UK by Alpha Laboratories Ltd © Alpha Laboratories Ltd. 2023

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